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teiubesc36 (November 30, 1999 at 12:00 am)
wow that was terrible,as a doctor she should help you,i don,t agreed with you,is better take 2-3 hours to "be healthy" cause is important to fight,instead of giving up.
Ensonamata (November 30, 1999 at 12:00 am)
I'd feel more inclined to listen to my doctor if she didn't damn-near kill me a couple months ago...I've made it this far, and frankly death is better than taking 2-3 hours out of my day to "be healthy."
teiubesc36 (November 30, 1999 at 12:00 am)
but you need to take good care of you,and as you know is very important to take the medication not when you feel like it...but as doctors tell you to do:):)
Ensonamata (November 30, 1999 at 12:00 am)
I'm pushing 20.
teiubesc36 (November 30, 1999 at 12:00 am)
how old are you?
Ensonamata (November 30, 1999 at 12:00 am)
I have CF and I feel so bad for all these kids....I must have a very weak case, because I live life like a normal adult/teenager. I get out, I'm relatively healthy, and I only take my medication when I feel like it...
teiubesc36 (November 30, 1999 at 12:00 am)
was trough gregory that i became aware of C.Fwas the first time i heard about this desease.for me greg will be allways a role model he did fight with everything he had.he never give up of fighting,not only to breath well,but also for is dream...is wonderfull voice will remain forever in the hearts of those who admired him...there is an association with is namewho keeps the fight against C.FREST IN PEACE
teiubesc36 (November 30, 1999 at 12:00 am)
only this year i saw a documentary were they did talk about C.F,a portuguese tv channel made a documentary about people who suffer from C.F and how they live day by day with the desease,some of them were lucky to be send to a spanish hospital to make a lung transplant,one of them is now 38 years old and she,s doing fine,in my country lung transplant are totally a disaster,if the people who as it,don,t go to spain they will die,cause my country is helpless when cames to threat people with C.F :((
teiubesc36 (November 30, 1999 at 12:00 am)
my heart is with all of you,i feel helplessi wish i could do more than just say to everyone,everything will be ok...iam from portugal,is impossible to tell how many people suffer from C.F...most people here doesn,t even know what C.Fis.that makes me so sad.iam very aware i do care,i do fight to let people know how hard and bad this desease is...is in all of you that i found the strenghtfor doing it,none of you are alone in this fight...god bless you all
breathstrong12 (November 30, 1999 at 12:00 am)
Your vest looks so much more advanced then mine=p but it really is scary hearing someone say that this thing you have is going to kill you.. There's not better way she could have put that? Can't we just find a cure now to prove her wrong? |
